Friday, September 17, 2010

everything i do, i do it for you

back to the ever pressing, ever infamous, ever mysterious question of WHY?! why why why did this happen to me? maybe if i ask enough, i'll get an answer... i had enough good karma in me to start a car, no, a truck, but the arguably worst thing in the world happened to me anyway. everything i believed to be true in the world, was absolutely false. now im just left with enough bitterness to fly a plane. maybe it was because i needed a second chance at life? ive thought about this question over and over, and given the chance to lead my life differently, i wouldnt change a single freaking thing about my life (except maybe i would wear more purple... i recently decided purple is the new pink.) i was living the dream. i was pursuing my goal of becoming a doctor, i was close to my family, i had a full social life, and i was happy. i have considered every possible outcome of all this, from going down in science history to becoming a world renowned author, and nothing, i mean NOTHING, could happen that would even slightly make this worth it. even if i become a billionaire, on the cover of forbes magazine, smiling next to oprah and the queen, (what up oprah!), still, this wouldnt be worth enduring at all. sigh. i have no doubt good will come of this, but no lesson or outcome will satisfy the question of why... so ive given up on asking that question. maybe, if im not going to gain anything from this, you all can gain something from this? sounds weird but it is kind of fitting. my whole entire life was always dedicated to other people, my family, friends, people i served. and now this suffering might all be for other people. my story might help advance the health field, my story can provide hope to patients in similar situations, and hopefully my story can motivate you all. it gives all this suffering some meaning, right? now, immediately after a tragedy hits close to home, people realize 'wow, life is short,' 'carpe diem,' 'live life to the fullest,' etc, but people soon forget their new found epiphanies, so i wont really motivate you by telling you that. instead i'll share with you all something diana told me succinctly and powerfully at a tailgate in '06, "MAN UP!!" seriously, if i can somehow handle or deal with my awful situation, you all have no excuse not to deal with the problems or obstacles in your way. basically, if i can do it, you can do it. MAN UP. as coach taylor says on the best show ever, friday night lights, 'clear eyes, full hearts, cant lose.' if i wont lose, you wont lose.

Wednesday, August 18, 2010

i believe i can fly

it was hard to have hope... really hard...pretty much impossible. i had just almost died. my entire life had been ripped away from me in an instant. i was terrified and alone. i could barely even believe in tomorrow, how was i supposed to believe in a future, a BETTER future? people kept telling me if i believed and had faith, i would get better. that line killed me. i deeply wanted to be hopeful and positive but i really couldnt. so then, i felt that if i didnt get better, it would be my fault, because i didnt believe enough. this guilt consumed me. 'well, this one person who was really sick, just decided to believe they would get better, and they did! right away!' people loved to tell me these stories to maybe encourage me? but instead, they just made me want to scream. life wasnt that simple. i wanted to say, have those people call me when theyve had a stroke and locked in syndrome. all i was capable of doing and all i wanted to do was to wake up every morning, get out of bed and work like I had never worked before. though I felt guilty every day, that would have to be enough. i was watching joel osteen the other day (mainly because my mom made me, i swear!). he says a lot of god is great stuff or jesus is the man type stuff, but if you listen closely, he says some profound and interesting things. he was saying how every person around you needs to encourage and believe in your dreams. he was also saying that the people you look up to have the ability to speak words that are so powerful to you. i realized that is how i got through it. the people around me were positive for me! though i couldnt believe myself, every person around me believed it for me. They had enough faith and optimism to make up for my pessimism. and i appreciate all the people who were brave enough to say things to me that were so positive and powerful, even before the doctors would say anything. I remember this one older med student, who I have always respected for her poise and intelligence, was saying something about me returning to medical school. though i couldnt say anything yet and couldnt even break a smile, every part of me was smiling inside. if she, the smartest girl ever, believed i was coming back to school, then i had to believe i was! then another teacher from med school, only a few weeks after my accident, through all my tears, she said 'this will all make you a better doctor.' for some reason, those words, since they were spoken so early on, were so powerful to me and always stuck with me. finally, i remember, one day my resident came in the room. i was visibly upset and my mom said, 'what do i do, she doesn't believe good things will happen.' My resident responded, ' well, whether you believe it or not, everything will be happening to you anyway!' what an epiphany, the burden i had been carrying for months was finally taken off my back. the guilt that was consuming me finally melted away. i could just let everyone around me be positive and believe in my dreams for me, and i could just concentrate on working hard every day. that would definitely be enough. so no, i definitely don't believe i can fly, i just really need you to believe that i can.

Wednesday, August 11, 2010

call on meeeee, call on me

drum roll please...I CAN TEXT!!!!!!! you all know that is secretly and sadly, one of my top priorities in life hehe. it is slow and difficult but it is completely by myself, which is all that really matters! im using my old phone, my crazy krazer, with my normal number. i hold the phone with my left hand and type with the middle finger of my right. my finger gets tired so i dont know if i will respond everytime! i already texted a few people because i knew it would be a weird/wonderful surprise for people to see my name pop up in their inbox! next goal - being able to TALK to you on the phone!

Wednesday, August 4, 2010

its gonna be me

i love(d) running. no really, i did! i enjoyed working out, and even found time to do it in med school! and i was pretty health conscious (that was sometimes an understatement...ask megan...vegetables with a side of vegetables anyone?). so, all that combined, i was in pretty good shape. and then, i had my stroke. within a few days, i was unrecognizable. i saw my legs which were muscular just a few days ago, were now toothpicks, skin and bones. i felt like the insides of my limbs were sucked out. it was like all my muscles had dissolved overnight. my body just felt like a useless pile. gross. i thought things would change once i started eating. but pureed eggs, pureed peas, and pureed pinto beans that i forced down didnt do anything but make me vomit. maybe things would be different? after months of practicing swallowing, failing 3 or 4 swallow studies (yes, first test i ever failed), and having no hope of swallowing normally zgain, i passed my swallow study! i got my last artificial attachment out, my PEG tube, and i could have regular food and drink. i shouldve felt more normal, right? false. i was filling up on pasta and pizza, but i felt and looked so empty. i realized my muscles werent just hidden, they were all gone... and i would have to start from scratch. and it was really from scratch...my first evaluation, every single muscle, from my head down to my toes, was rated as a zero out of five. so my therapists and i, not knowing where to start, went to work. for 6 hrs a day for 5 months, i worked, trying to reignite these lifeless limbs. by the time i left the hospital, every single was at least a one out of five, meaning they had all turned on! so my next goal was to make them stronger. though my muscles had turned on, i still looked deflated. i knew i had A LOT of work ahead... now, a few days ago, my good friend manoj was here. he casually said, 'u look good, do u work out?" i laughed because i was thinking, 'yea, obvi, only every second everyday!' but it really got me thinking. ever since the stroke, ive looked sick, weak, and emaciated, but never good. while i was thinking about this later on, i had reached out to grab my armrest and pull me over. i looked down and there i saw it....a bicep! i could see a little muscle belly poking through! though i definitely still have a lot of work, my hair is still wild, and im paler than my white, eminem-esque trainer, the real me is slowly poking through. so eventually, totally and completely, from head to toe, its gonna be me.

Monday, July 12, 2010

will you be there?

let me share with you all a little story. not because it ties in perfectly with my blog, but because its a really cute story! the other day, i was watching tv with my nani (grandmother). she was telling me about how back in her day, no one ever said "i love you" to each other. so, for as long as she could remember, her husband never once told her he loved her. but she never had any doubt in her mind that he loved her like crazy. she saw it in his every action, everyday... it is such a simple story, but so profound. do actions speak louder than words? by some stroke of luck, i have become somewhat of a writer, so i do believe words have power. maybe our hearts fall for words, but our minds need something more, some action, some evidence, some proof. i guess that was how i was. yes, i was so vulnerable to what people said, but sometimes, that wasnt enough. whether it was because i didnt fully trust people, or their words were too good to be true, i needed more than just their words. the doctors and everyone began to be more positive and optimistic to me. some were saying i would get all better, i would walk again, i would do everything again. i shouldve been ecstatic, right? that was exactly the news i had been dreaming of hearing for months. but i wasnt ecstatic at all, i was crying. to me, they were just words, words that sounded way too good to be true. where was the evidence, where was the proof?!?... lets just say, im still waiting for that proof. another phrase i kept hearing a lot was not from my doctors, but from my friends. i kept hearing people say they would be there for me through everything. but what did that mean? yes people were all there then because i had just had my injury, but i thought, what about in a few months or a few years. i feared the worst. i knew the novelty of being a sick persons friend would wear off and people would get back to their own lives. i kept hearing these words of support from people, which shouldve comforted me, but instead, scared me. they were just words, i needed proof. this time, i got ALL the proof i ever needed, and then some. some of you may know my best friend rajul. we met while we were still in the womb (literally! our moms were best friends and were pregnant together). and now 25 years later, we are still best friends, two souls, but one heart, and about a million inside jokes. she was visiting one day and told me she had a surprise for me. she then turned around, lifted up the back of her shirt, and what i saw left me awestruck. it was a tatoo, of my name, written in hindi. wow. i instantly knew then that my friends werent going anywhere. rajul was saying through that, that she was sticking with me forever, no matter how old and grumpy i get (or rich and famous)! to me, it meant i was worth sticking around for, and i really needed to realize that...so, now i ask you,
If I lay here
If I just lay here
Would you lie with me
And just forget the world?

Wednesday, June 16, 2010

Whatchu Say

http://www.youtube.com/watch?v=CEEZFJKfG8Y
my fave video of this song :)

one thing i love most is people. i love talking with anyone and everyone. i thrived on interacting with people.(you dont have 1400+ friends on facebook by being shy! jk) this quote from the movie waking life, was in one of my papers from senior year,
'Life was raging all around me and every moment was magical. I loved all the people, dealing with all the contradictory impulses - that's what I loved the most, connecting with the people. Looking back, that's all that really mattered.' but now, i couldnt connect with anyone. i felt and still feel so separate from anyone ive ever met and all the other patients ive seen, because i totally lost the power to speak. you have no idea how devastating and frustrating it is to be trapped inside your head, to have so much to say but cursed with silence. the ability to speak is so human, so i felt less than human... much less. i had to let go of any power i had in this world, and just let the world work around me. even though i knew the answers to everyones many questions like 'how do i work her wheelchair' or 'wheres her tshirt', i had to accept that the world would function without my answers. i had to finally learn to find humor in it all. i had to create inside jokes with myself with these situations. for instance, some of you might remember my infamous tailgate shirt that said, 'having more fun than you since 1984.' i kept this shirt solely for the memories, i never planned on wearing it again. but somehow, it got mixed up in the hospital in the pile of tshirts i was to wear everyday. so a few times a month, i would show up to therapy in my gross, awkward tailgate shirt. i could only laugh to myself at the awkwardness, i couldn't tell anyone i wasn't supposed to wear it. i couldn't tell anyone because a) i couldnt physically tell them and b) if i tried to explain duke tailgate to anyone they wouldn't understand! so i learned to just swallow the things i wanted to say. but then i started saying some sounds and some people could understand me at times. One time, my excitement overcame my better judgement. i was usually good at keeping my mouth shut...usually. one day, my nurse came in laughing hysterically and said she and the other nurses were talking about going to a strip club. i excitedly opened my mouth and tried to say, 'i have been to one!' (yes mom and dad, ive been to a strip club, but it was only for a few minutes and was totally awkward). but my nurse thought i said, 'i was one!' the misunderstanding got so out of hand that she thought I had the job on weekends to pay for my duke education. i then spent the next 40 minutes trying to get her to understand the words, 'no i wasn't one.' this was one of the most frustrating and humiliating moments of my life, but in retrospect, its pretty hilarious. i have to admit, the experience has scarred me for a while, because i won't even attempt to talk to new people or people i don't already know will understand me, to prevent any misunderstandings. so though i don't really talk to new people now and my voice is still far from normal, i am slowly starting to connect with people. looking back, thats all that really matters anyway.

Tuesday, June 1, 2010

and i will try to fix you...

so life in the hospital was pretty lonely. my friends came as much as they could, but it was mostly on weekends. but i did spend hours everyday with a few people who were about my age. i listened intently to these people's problems and these people were there to celebrate my victories. i really got to know these people, and though i couldnt talk, these people had gotten to know me. these these people were my therapists and nurses, and they had become my friends... and they wanted to fix me. the other patients were scared to talk to me because i looked depressed and helpless all the time, and i was like a ticking time bomb, i could explode into tears at any moment. so im sure i wasnt the easiest patient to face at first for even my therapists and nurses. i couldnt even do ANYTHING in therapy. i had an awful bite block, so i couldnt do anything in speech therapy, and every muscle in my body was paralyzed, so i couldnt do anything in physical therapy. but they always approached me with a smile (and some joke about duke!) i couldnt talk to them at all, i couldnt even smile back at them, but somehow, for some reason, i think they liked me...they knew little about me, probably what they could gather from the pictures in my room, but what was most important was that they fully understood what happened to me. they understood that though my entire body didnt work, my mind was as sharp as a knife. they understood my progress wasnt measured by how much i could stand or walk, but by the minuscule advancements of activity of random muscles. they understood what all i was going through, because they had dealt with somewhat similar patients. they somehow understood me and that was what i desperately needed in people, or new friends. i had a hard time trusting new people, but i trusted them.... i trusted them because my nurses were dedicated to making everyday a little happier. i trusted them because my therapists were dedicated to making me a little better everyday. but most of all, i trusted them because they were dedicated to making...miracles.